We had another appointment today regarding Lincoln. Unlike the last post, things have gotten somewhat worse. The fluid around his skin has gotten significantly worse, and the fluid around his lungs has also gotten worse. They found some fluid in his abdomen as well. Not a significant amount, but the fact that it's there isn't a good sign. There isn't fluid around his heart which is good, and it's beating nice and strong. Blood flow throughout the body and to the brain is also good. My doctor noticed today that the placental blood flow is still normal, but it's on the outer end of normal and she predicts that it will become abnormal in the next few weeks. Which means that he will need to be delivered within this month (most likely) if we want to proceed with aggressive treatment.
Now most of you know, I am not very far along. I am currently 23 weeks. The doctor said that right around 24 weeks they can deliver babies and have an outcome of survival. That is also with HEALTHY babies, and we know that little Lincoln is a very sick little boy it seems. So the outcome is very slim that he will make it if he comes out this early. This news is very grim and very scary. To put it all into words is much harder then how it feels.
SO, what are we going to do? We are going to take things week by week. Of course we hope that the placental blood flow will continue to stay normal so he can stay inside and grow as long as he possibly can. The longer he grows inside, with good blood flow, the better. We have spoken to the neonatologist about how we want to proceed once little Lincoln is out, whenever that may be.
We are still hoping and praying and relying on faith. Are we discouraged? Yes. Scared? More then ever. I read daily about these precious miracle babies that survive hydrops and I also read mourning families who have lost their babies on this helpless journey.
I have cried a lot of tears today and in the weeks past. I have prayed so much and begged to God for a miracle. But sometimes I just need to see clearly that God has his hands in everything. Even the things that we want and hope for sometimes aren't in his master plan. Don't take that as us giving up, because that's surely not the case. I just ask you pray for Kenny and I to find some peace in the process.
Wanted to give a very HUGE thank you to all of those who were involved in the plant, card, picture, and gift cards that were delivered to our house this past weekend. Also to those who have sent cards, made goodies, and very generously given us cards to go out to eat. You all are so thoughtful, generous and kind and a thank you does you no justice in how much you all have touched our hearts. We are forever grateful for not only the monetary things, but also for the prayers and thoughts. I hope someday we are able to be there for all of you half has much as you all have been for us.
Little Lincoln has been kicking this whole entire time I have been writing this blog which tells me he is alive. Right now, he's a growing baby boy that just needs lots and lots of love. He carries a piece of my heart.
Lots of love,
Kodyjo
Oh Kody, I am so sorry to hear about your precious, precious son....I know exactly how you are feeling....My little princess, Hannah Faith went with Jesus just 4 short weeks ago due to hydrops fetalis....She was 28.5 weeks and had fluid around her lungs and belly....She had developed reverse placental flow where the blood was pulling away from her and they had to give her, her best chance....I will be praying for your son that God will keep His hand upon him and your entire family as you walk this journey of the unknown.....Praying for a miracle for your son!
ReplyDeleteStill praying. Come on Lincoln! Defy those odds!
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